People with multiple sclerosis (MS) often face higher unemployment rates. Understanding the challenges and available support can help you navigate employment and financial stability.
Many people living with multiple sclerosis (MS) experience changes in their ability to work. This may be due to symptoms like fatigue, mobility challenges, or cognitive changes.
Research shows that people with MS are more likely to experience unemployment. Finding support can help you navigate the workplace — and if you can’t work, finding financial support can make a big difference to your quality of life.
Research shows that people with multiple sclerosis are more likely to face unemployment.
A 2020 study found that rates of unemployment among people with MS can be up to 80 percent. The same study found that most people with MS who leave the workforce do so within the first three to five years after diagnosis.
MS is a chronic neurological condition that often affects people during their prime working years. The symptoms of the condition include pain, cognitive changes, and mental health changes. These symptoms can affect your productivity and executive functioning, which can in turn impact your employment status.
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A 2024 study, based in France, highlighted that employment rates among people with MS dropped by 6.6% within a year of diagnosis and were 46.2% lower after 20 years compared to the year before diagnosis.
This shows the long-term impact MS can have on your ability to maintain consistent employment.
According to the research mentioned above, several factors contribute to the higher unemployment rates observed among people with MS.
These include:
- Physical symptoms. Physical MS symptoms include muscle weakness, coordination difficulties, and chronic pain. These symptoms can make certain tasks difficult or even unmanageable without appropriate accommodations.
- Cognitive changes. Cognitive impairments, such as forgetfulness and difficulty concentrating, can affect job performance. This is especially the case in roles requiring multitasking or quick decision-making.
- Fatigue. Mental and physical fatigue are common MS symptoms. This overwhelming tiredness can interfere with work schedules and productivity.
- Mental health. Depression and anxiety are more common among people with MS. This potentially impacts motivation, focus, and overall job satisfaction.
Workplace factors. Lack of understanding or support from employers, inflexible work environments, and inadequate accommodations can lead to job dissatisfaction or loss.
Medical treatment, workplace accommodations, and support services can help people with MS maintain employment.
For people facing unemployment due to MS, several financial assistance programs are available in the United States.
These include:
- Social Security Disability Insurance (SSDI). Provides benefits to individuals who have worked and paid Social Security taxes but can no longer work due to a disability.
- Supplemental Security Income (SSI). Offers financial assistance to individuals with limited income and resources, regardless of work history.
- Medicare and Medicaid. These programs can help cover medical expenses. Eligibility varies based on factors like income, age, and disability status.
- Nonprofit organizations. Groups such as the Multiple Sclerosis Foundation offer grants and assistance for expenses like rent, utilities, and medical equipment.
Navigating these programs can be complex, but connecting with a social worker or financial counselor familiar with disability resources can help.
Beyond financial assistance, various organizations provide support to help individuals with MS manage their condition and maintain quality of life:
- National Multiple Sclerosis Society. Offers a wealth of resources, including educational materials, support groups, and advocacy programs.
- Multiple Sclerosis Foundation. Provides services such as helplines, educational programs, and wellness initiatives to support those affected by MS.
- Support groups. Connecting with others facing similar challenges can offer emotional support and practical advice. A doctor can help you find a local or online MS support group.
Engaging with these resources can help people with MS feel less isolated and more empowered to manage their health and employment concerns.
Research has shown that the unemployment rate for those with MS can be up to 80 percent.
Multiple sclerosis can affect employment in several ways, such as the effects of physical symptoms, cognitive changes, and a lack of understanding or support from employers.
Unemployment is a significant concern for many living with multiple sclerosis, influenced by a combination of physical, cognitive, and workplace factors. However, numerous resources and support systems are available to assist individuals in navigating these challenges.
By using financial assistance programs, seeking workplace accommodations, and connecting with support organizations, those with MS can better manage their employment journey and maintain a fulfilling quality of life.